Well, we've started the next block and all is well (ish) so far. He had a really heavy week last week, with two lots of IV chemotherapy on Monday, Intracmuscular Chemotherapy (a rather painful injection into the thigh muscle) on Wednesday, two flue jabs on Thursday, and a trip to theatre on Friday for them to give chemotherapy directly into the spinal fluid to protect the brain.
It was a rough weekend with him not feeling so good, but we've had worse.
Back to the hospital yesterday for a repeat of last Monday, what a delay! Its frustrating and I don't like to complain. Whilst he is a very sick little boy, he wasn't in need of "nursing" just treatment and the nurses are so stretched. We got there in the end.
On top of that I've decided to do some fundraising for the ward - specifically for the Oncology patients and their parents, the sleeping facilities leave something to be desired and its important to try and make things as comfortable as possible.
A very good friend is helping me, more than I could ask, we are going to try and do lots of little things into the new year and the current plan is to try and organise a charity ball, with an auction and raffle.
It would be great if we could pull this off!
The worst thing today Matthew had a bit of a wobble and told me he wishes he could travel through time so this would all be over. What on earth can you say to that? Obviously I did say something, but everything seems so inadequate. It breaks my heart.
Thing is though, I am not sure if this will ever be truly over. The check ups will carry on for life virtually, partly because they are still learning so much about the disease - 20 years ago most people died from this.
No comments:
Post a Comment