Having been up most of the night before, trying to come to terms with my own feelings without Matthew being aware how terrified I was for him, I actually woke feeling a little stronger and more able to deal with whatever came.
I have never seen the NHS move so fast.
We were waiting for an urgent transfer to our local childrens hospital, they hadn't been able to get him a bed on Monday. Matthew was transferred by ambulance at 10am. He was so brave as he went on his own with a nurse and the ambulance crew. But he was also quite chuffed as "they had the lights and the sirens on Mummy".
I had to call home on the way to the other hospital as Thomas was very upset, he was confused where his brother was, he doesn't like change at all.
At 1230 I was at the hospital, signing consent forms for theatre. Poor Matthew was so scared about the Anaesthetic, but we met Ernie the Anaesthetic doll, which made him laugh a bit. I told him that when he woke up he had to sit straight up and say "I feel greeeaaat" just like Ernie did.
He went into theatre about 4pm and came around quite chirpy, more interested in being able to have something to eat. I really didn't think we would have the results today as it was so late, but we did.
Matthews dad had come up to the hospital and at 1800 we were taken into the family room to be told the result.
The Bone Marrow was abnormal, he had Leukaemia, but it wasn't as simple as that. They needed to find out which type he had, and on first inspection it looked like Acute Lymphoblastic Leukaemia, the most common type, they needed to check the Chromosomes of the Leukaemia(that would take two weeks) and then they needed to determine his risk status (that would take 28 days).
Treatment was to start the next day. If left untreated its fatal within a month.
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